Last year they went for a cruise around the world for three long months. Around this time of the year they returned having enjoyed a wonderful time in the companies of fellow silver generation cruisers. A year on, after a month at the hospital, one of them is beyond clinical treatment with a ruptured hernia and an infected abscess which cannot be treated due to weak heart condition. The other had to undergo at the same time an exicion of lesion of soft palette and now needs fortnightly visit to the hospital for several months for close supervision. After 52 years of togetherness, they have got no friends or relatives nearby and as luck would have had it, the covid induced travel restrictions, they have to rely solely on professional carers. Fortunately, for them they live in London and privileged to receieve some of the best cares in the world. Yet when I speak to them their helplessness echos in my ear. They struggle to remember what they need to do or even what they have to tell the doctor when they visit next. With the ageing population and nuclear families often without even children the challenges silver generation faces to take care of themselves are innumerous and fast becoming universal. Add to that the general challanges of palliative care, particularly in less developed countries.
Effective communication, shared decision-making and assessing the needs of patients and caregivers during palliative care is an important goal in medical practice. Yet many patients in the palliative phase experience problems communicating with their health care providers.
Patients may not have understood or used the provided information or has limited recall of the medical information. These problems might be attributed to the emotional and psychological distress caused by the patient’s current medical situation.
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